See Who’s Joined the Search
The National MPS Society is asking physicians and other healthcare
providers involved in caring for children during their path to diagnosis
to take a pledge to search for MPS patients and encourage their
colleagues to do so as well. Following is a list of those who've joined
the search to date. We thank these individuals for their support of
this critical initiative!
William Rhead, MD Geneticist Medical College of Wisconsin
Rick Martin, MD Geneticist Washington University
Anne Kinsman Cincinnati Children's Hospital Medical Center
Dawn Laney Genetic Counselor Emory Department of Medical Genetics
Sara Copeland, MD Pediatrician Children's Hospital of Iowa- Metabolic Clinic
Eleanor Botha Genetic Counselor Emory University
Laurie Bailey Genetic Counselor Cincinnati Children's Hospital
Robert Hopkin, MD Geneticist Cincinnati Children's Hospital
Gregory Grabowski, MD Geneticist Cincinnati Children's Hospital Medical Center
Shayne Stokes, MD Pediatrician
Karen Grinzaid Genetic Counselor Emory University
Paul Harmatz, MD Pediatrician Children's Hospital Oakland
Barbara Burton, MD Geneticist Children's Memorial Hospital
mark lipson, MD Geneticist kaiser permanente
Angela Scheuerle, MD Geneticist
Chester (Chet) B. Whitley Geneticist University of Minnesota
Paul Woodard, MD Pediatrician St. Jude Children's Research Hospital
I. Anderson, MD Geneticist University of Tennessee
Tamison Jewett, MD Geneticist Wake Forest University School of Medicine
Virginia Proud, MD Geneticist Children's Hospital of the Kings Daughters
Cathy Stevens, MD Geneticist T.C. Thompsons Children's Hospital
Klane K. White, MD Orthopedist Seattle Children's Hospital & Regional Medical Ctr
chimen kesserwan, MD Geneticist nhgri
Duane Superneau, MD Geneticist Genetic Services of Louisiana
Dorothy Grange, MD Geneticist Washington University School of Medicine
Paul Fernhoff, MD Geneticist Emory University Genetics
Lakshmi Mehta, MD Geneticist Schneider Children's Hospital
Figuera Luis E., MD Geneticist CIBO-IMSS
L.J. "Skip" Elsas, MD Geneticist University of Miami
Paul Levy, MD Geneticist Children's Hospital at Montefiore
Robert Steiner, MD Geneticist OHSU
Colette Parker, MD Neurologist University of Mississippi Medical Center
Penfield Jennifer Oregon Health & Science University
Maria Veronica Munoz Rojas, MD Geneticist
Marsha Browning, MD Geneticist MGH/Harvard
Gregory Pastores, MD Geneticist NYU School of Medicine
Cynthia Tifft, MD Geneticist Children's National Medical Center
Stephen Bowen, CGC Genetic Counselor
Lori Terry, CGC Genetic Counselor Wake Forest University School of Medicine
Erin Demo, CGC Genetic Counselor University of North Carolina School of Medicine
Heather Preiss, RN Nurse University of North Carolina School of Medicine
Joseph Muenzer, MD Geneticist University of North Carolina School of Medicine
Muge Calikoglu, MD Geneticist University of North Carolina School of Medicine
Vandana Shashi, MD Geneticist Wake Forest University School of Medicine
Ann Martin, CGC Geneticist Carolinas Medical Center
Ellen Boyd, MD Geneticist Fullerton Genetic Center
Kerry Crandall, CGC Genetic Counselor Fullerton Genetic Center
Teresa Meadows Nurse Practioner Children's Hospital of the Kings Daughters
William Wilson, MD Geneticist University of Virginia Health System
Shawn Lipinski, CGC Genetic Counselor University of Virginia Health System
Jennifer Sullivan-Saarela, CGC Genetic Counselor Duke
Danielle Dong, CGC Genetic Counselor University of Virginia Health System
Stephen Braddock, MD Geneticist University of Virginia Health System
Priya Kishnani, MD Geneticist Duke
Isle Anderson, MD Geneticist University Of Tennessee
Parul Jayakar, MD Geneticist Miami Children's Hospital
David Flannery, MD Geneticist Medical College of Georgia
Carolyn Lovell, CGC Genetic Counselor Medical College of Georgia
Olaf Bodamer, MD Pediatrician
norberto Guelbert, MD Geneticist
norberto guelbert, MD Geneticist
Dorothy E-Agbafe, MD MD/DO
Ed Spence, MD Geneticist Carolinas Medical Center
Teresa Blake, MSW Genetic Counselor University Of Tennessee
Joseph Wagstaff, MD Carolinas Medical Center
Jill Pouncey, CGC Genetic Counselor Thompson Children's Hospital
Cam Brasington, CGC Genetic Counselor Carolinas Medical Center
Julie Neidich, MD Geneticist Nichols Institute
debra freedenberg, MD Geneticist Vanderbilt
Alice Basinger, MD Geneticist Cook Children's Hospital
Curtis Rogers, MD Geneticist
pyeritz reed, MD Geneticist University of Pennsylvania
Greg Enns, MD Geneticist Stanford University
Judy Franklin, RN Nurse University of Alabama at Birmingham
Daniela Giovannetti, MD Geneticist
Maria Descartes, MD Geneticist University of Alabama at Birmingham
Thaddeus Kurczynski, MD Geneticist Akron Childrens Hospital
Judy Miller, RN Nurse Practioner University of Iowa Children's Hospital
joao novaretti, MD Cardiologist
SERGE MELANCON, MD Geneticist Montreal Children's Hospital
Dave Viskochil, MD Geneticist University of Utah, Dept of Peds
Monica Grover SUNY Downstate Medical Center
Kiran Reddy, MD SUNY Downstate Medical Center
Prita Mohanty, MD SUNY Downstate Medical Center
Kelly Eberhardt, MD Pediatrician SUNY Downstate Medical Center
Tawana Winkfield Royster, MD SUNY Downstate Medical Center
Melvyn Braiman, MD SUNY Downstate Medical Center
Shyam Satharnandern, MD SUNY Downstate Medical Center
Caio César Benetti-Filho, MD Geneticist
Pamela Arn, MD Geneticist Nemours Children's Clinic
Nancy Mendelsohn, MD Geneticist Children's Hospitals & Clinics of Minnesota
Juan Francisco Cabello, MD Neurologist INTA, Universidad de Chile
John Clark Bioscrip Home Infusion
Karen Spano Bioscrip Infusion Services, LLC
Nicola Longo, MD Geneticist University of Utah, Pediatric Medical Genetics
David Molter, MD Otolaryngologist Washington University in St Louis
Cornelius Cathcart, MD Pediatrician
Asit Tripathy, MD Cleveland Clinic
Patty Malreany, MD Pediatrician Pediatric and Adolscent Partners
Ronnie Willenheimer, MD Cardiologist Medical Director Heart Health Group
Elizabeth Massella, MD MD/DO Greentree Medical Associates
Helio Pedro, MD Geneticist University of Medicine and Dentistry / NJMS
Wendy Chung, MD Geneticist Columbia University
Max Bulmash, MD Pediatrician NYU Medical Center
luz norela correa, MD Neurologist
Fisher Amy, CGC Genetic Counselor
Stephanie Krasovec, RN Nurse
Christine Eng, MD Geneticist Baylor College of Medicine
maria del carmen gonzalez-rios, MD Geneticist UPR School of Med., Ped.,Genetics
Danetta McDaniel, RN Nurse Practioner
Rebecca Olson Nurse Practioner Children's Hospitals and Clinics of Minnesota
Nancy Mendelsohn, MD Geneticist Children's Hospitals & Clinics of MN
Raymond Wang, MD Geneticist Children's Hospital of Orange County
astrid medina, MD Orthopedist
Thomas Lehman, MD Rheumatologist Hospital for Special Surgery
banwari goyal, MD Pediatrician
Richard Erbe, MD Geneticist Women & Children's Hospital of Buffalo
Rose-Mary Boustany, MD Geneticist American University of Beirut
Max Bulmash, MD Pediatrician
Gustavo Contreras, MD Geneticist Geneticist
