Share your MPS Story If you or someone you know is affected by an MPS disorder, please share your MPS story and help us commemorate and celebrate the individuality of those affected by MPS disorders. Submitted stories will be displayed on the Voices of MPS page of this site. It may take a couple of weeks to process and post your story. Please check back periodically. All fields marked with an asterisk(*) are mandatory. MPS Patient’s First Name:* MPS Patient’s Last Name:* Type of MPS or ML:* Why This Patient Counts: Please provide a sentence or two about what makes this individual special, unique and a role model for others. (150 words max.) Favorite Hobbies: (150 words max.) Proudest Accomplishment: (150 words max.) MPS Heroes: Please describe the one medical professional who’s had the greatest impact on this patient’s care and well-being. (150 words max.) Personal Diagnosis Experience: The path to diagnosis for many MPS patients can be a complicated, lengthy process. We encourage you to share this important part of your MPS patient’s story here including information such as: the age at which you first suspected something was wrong and the first signs and symptoms you noticed; and the age at which an accurate MPS diagnosis was made. (500 words max.) Words of Wisdom: This can be a favorite saying or phrase, or simply advice that this has for others in similar circumstances. (150 words max.) Upload a Picture: We will utilize this information should we need to reach you to ask questions regarding your submission. Your personal information will not appear on this web site. Your First Name:* Your Last Name:* Your E-mail Address:* Your Phone Number: About the Campaign Faces of MPS Share Your MPS Story Voices of MPS See Who’s Joined the Search

Privacy Policy Site Map The Join the Search campaign is made possible by support from BioMarin Pharmaceutical Inc., Genzyme Corporation and Shire Human Genetic Therapies.