Payton always is smiling and so mentally accepting of what is going on. Even though he can't talk we can see every day through his eyes that he is who he is, because of GOD. He has made all of us realize how short lived life really is. He is the happiest little guy when he is in the hospital. They always say, "he is the sick one?". No matter what is thrown his way he is a fighter, which in return makes all of us around him fighters also.
Favorite Hobbies:
Playing with any size, shape, color, or amount of bouncy balls. He would play catch with anyone all day long and never be tired from it. He loves to sit on the floor or cuddle on the couch and watch his FAVORITE movie....Toy Story...Payton also likes to scoot around on his plastic 3 wheeler, which he runs over all of our feet everyday about 10 times a day.
Proudest Accomplishment:
The other day he finally realized how to repeat something that makes people laugh. He took his sippy cup and held onto with his teeth and let go with his hands. His dad and I laughed just because of how it looked dangling there. So all-night and about every 2-3 days after that he will walk up to us and do that to make us laugh. So his accomplishment was learning a new thing. Anytime that happens it feels like I am watching his first baby step again.
MPS Heroes:
Doctor Mary Wunderle of Carson City. If it was not for her concerns and huge heart then it would of been a very long time for Payton to be diagnosed. She is on the ball when it comes to Payton and his medical needs. We love her.
Words of Wisdom:
Whenever you hear people say, "why me, why us, why him/her?". GOD made me think differently then that. I think and feel this way, Why not me, why not us, why not Payton. Would I want Payton to be someone else's child?. NO. GOD chooses "Special" Parents to raise "special" kids. So be thankful for each and every day that GOD lets you have your angel on earth.
Personal Diagnosis Experience:
Payton was born on October 8, 2000. He was not breathing when he was born, they had to help him breath. So ever since he came home from the hospital he had signs. Rapid weight gain, a pound a week, congestion, snotty noses, low grade fevers that would happen frequently, pneumonia by 1 month old, 2 inguinal hernias at 3 months, 2 different sets of ear tubes by 1 years old, very short legs compared to the rest of his body, frequent ear infections and upper respiratory infections, wasn't talking until 16-17 months old, finally walked at 18 months and 2 days old. Dr. Wunderle sent us to the geneticist and that was when he was 21 months old. That is when the geneticist said that Payton had an enlarged liver and coarse facial features. So he had his blood and urine tested, and then the skin biopsy that was sent to the Mayo Clinic. Finally February 26th of 2002 we received the life changing results from the Mayo clinic testing that confirmed severe MPS II.
