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Why Ilya Counts:
This is my first and unique child. He is five years old.
Favorite Hobbies:
Now it is mostly music due to problems with his eyes. Cartoons pictures and children’s books when it was possible.
Proudest Accomplishment:
The higher point of his maturity is his first and second year because he was not so far from the ordinary.
Words of Wisdom:
Never lose the hope. Keep your best efforts to fight.
Personal Diagnosis Experience:
The problems appear on the first year but nobody predicted it was MPS. The most difficult problem was the size of his head due to pressure inside. He can not stay without Tab.Diacarbi because of it. The accurate MPS diagnosis was made at 5 years age at the Medical-Genetic Scientist Center in Moscow.
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