When you look at Christopher, you see his strength. When you listen to Christopher, you hear his laughter. When you hug Christopher, you feel his love. Christopher has brought joy and happiness to the lives of many different people. He is a true inspiration to his family and friends and he reminds us everyday that we should never give up and never stop smiling.
Favorite Hobbies:
Christopher loves anything that has to do with Trains, Planes and Automobiles (and Trucks). Jay Jay the Jet Plane is his favorite!
Proudest Accomplishment:
Christopher has already experienced more in life than most children his age will in a lifetime. He has gone through, (and is still going through), a remarkable journey...Christopher has undergone an unrelated Umbilical Cord Blood Transplant in December 2005. His strength and stubbornness has brought him, thus far, through this life-threatening process in hopes to a better life. Today he continues toward complete recovery.
MPS Heroes:
Dr. Paul Szabolcs!!!! Dr. Paul, (as we call him), has known Christopher for over a year now - caring and continuing to care for him throughout his Transplant process at the Pediatric Blood and Marrow Transplant Program at Duke University. We know that Dr. Paul will always be a HUGE part of Christopher's life and we will forever be grateful for his expertise and commitment toward Christopher. Christopher sees Dr. Paul as his buddy and his MPS Hero!
Words of Wisdom:
Follow your heart - Be persistent - Know that you have done the right thing, no matter what other people think - and HOPE!
Personal Diagnosis Experience:
Christopher was diagnosed in October 2004, approximately two years after his birth. He didn't show any signs of the disorder except for the sinus infections he got every month. At first, we thought this was common for someone his age, but when Christopher kept getting them and for a longer period of time, we knew it had to be something else. We were told many times it could be his tonsils and adenoids, but unfortunately after two surgeries, the problem continued. We kept insisting something else was wrong and after every possible test with no outcome, Christopher's pediatrician suggested we see a Genetic Counselor. It was at this point, we were told of Christopher's diagnosis.
